4 On profiling and diagnosis
Appreciating the patient’s predicament
Introduction
Foucault (1963) writes of: ‘the endless task of understanding the individual’. The consultation provides a bounded space to pursue this quest – the attainment of which must always be limited but also, crucially, must always attempt to be sufficient. Before setting out on this journey of discovery, the practitioner needs to be equipped with a sense of the extent to which any person is knowable and any condition is diagnosable. It is a cliché beloved by many who speak about holistic medicine that the goal is to ‘treat the whole person’, the correlate association being that it is possible to first know the whole person; an assertion that stands in need of challenge. A further well-worn maxim is that the aim of holists is to treat the ‘cause of disease, not its symptoms’, again implying that causes can be commonly discovered. These blandishments are part of the hubris of some CAM proponents and practitioners and one looks askance at those who have actually spent much time with patients who continue to proffer them as attainable absolutes. Indeed, the uncritical reiteration of such statements proffered as mantras of holism has served to denigrate the notion of holism itself.
• Appreciate the predicament of the patient, and the influences that have shaped and continue to adapt or contain that predicament, as broadly and deeply as is possible and practicable –
We might add a rider to this instruction –
• In pursuit of the above goal the practitioner should temper her approach in the light of, and with respect for, the patients’ agenda and the degree to which the patient either desires or is able to participate.
Expectations and Agendas: Never Assume
Practitioners may assume that they know what patients in general want from the clinical encounter but this, in actuality, varies between patients. Collins et al. (2007) observe that: ‘there continue to be limits to, and uniqueness in, individuals’ experiences of healthcare, for while some patients expect greater understanding and involvement, others want little’.
Peck et al. (2004) distinguish between patient expectations and patient requests: ‘An expectation refers to what a patient wants to happen or thinks will happen, while a request refers to what a patient asks of the clinician’. Expectations commonly remain unvoiced and therefore unknown unless the practitioner directly asks the patient to talk about them. Peck considers that: ‘relatively little is known about the specific expectations patients bring to the clinical encounter’ [original italics] but that: ‘Patients’ expectations are varied and often vague. Clinicians trying to implement the values of patient-centred care must be prepared to elicit, identify and address many expectations’.
Barry et al. (2000) studied unvoiced agendas in general practice consultations and their findings and conclusions warrant extended discussion here. While noting the difficulty in defining the notions of expectations and agendas, they consider patient agendas to include, yet constitute more than patient expectations so that patient agendas involve ‘ideas, concerns and expectations’. One might additionally suggest that patient agendas include, or are moulded by, the patient’s values, preferences, goals, aspirations, biases and personal influences (e.g. family opinions, pressures and commitments). Patients’ agendas may be divided into particular areas of concern such as social agendas and emotional agendas. These can be combined into a concept of ‘total agendas’. The extent to which practitioners are able to determine patient agendas is based on their beliefs and behaviours:
So what should practitioners ‘believe and do’ to enable the patient to be fully present and fully expressive of their total agenda in the consultation? Barry et al. (2000) note that:
• So what do you think of the herbal medicine?
• What do you think it is doing for you?
• Do you think it is doing anything?
• Do you think it is causing any problems?
• Is there anything you would change about it?
• What would you like it to do that it isn’t currently doing?
Phytotherapist: ‘So do you think the herbs are having any benefits?’
Patient: ‘Well, it’s hard to tell. I’m not sure that there’s much of a difference’.
In exploring the patient’s expectations and agenda, the practitioner must inevitably arrive at a point of critical reflection on her own expectations and agenda – regarding the patient, the consultation and her modality. A crucial development is for the practitioner to cease to identify her healing identity primarily with her tools (e.g. herbs) but rather with her self, in tune with Gordon’s (1982) definition of holistic medicine as: ‘an attitudinal approach to healthcare rather than a particular set of techniques’.
Usherwood (1999) refers to Levenstein and colleagues’ (1986) discussion of the two agendas of patient and practitioner and summarizes thus:
This represents a questionably narrow, passive and acquiescent view of the practitioner. A different take on considering the practitioner’s agenda would be to consider what the practitioner personally hopes to get out of the consultation process since agendas are based on goals. Daghio et al. (2003) and Fairhurst and May (2006) have looked at the elements that general practitioners felt as satisfying in their work. Daghio et al. found that:
• So could you tell me what you would like, ideally, to get from this consultation?
• Is there something, particularly, that you would like to get from this consultation?
• What would you like to achieve from this consultation?
• I’d really like to get a better perspective on things.
• I want to know what’s really going on.
• I want to understand what’s happening to me.
• I want to know if you think he (referring to a child patient) really does have asthma because I don’t think it is.
• I just want to be able to get to sleep!
• I just want this to go away.
• Well, if you’ve got something to take the pain down by even 10%, I’ll settle for that.
• Well, I want a baby. I mean – not right at the end of this consultation!
• I don’t want to take drugs for this. I don’t want to be on something for the next 40 years.
• I just want to get my life back.
• Well just … you know … everything!
• Well the flushes really, if we could stop that then I can get on with things again.
• I don’t know … I’m just ready to move on now.
• I just need something to help me cope.
• I need some ideas about what to do next.
• I just want a different viewpoint because I’m not happy with what I’ve got so far.
• Oh hell … I don’t know … can we come back to that one?
• I need somebody to actually tell me what’s going on.
• Well I don’t want anything that will affect my medication.
• Well, yes … I know what I don’t want …
• I don’t know really … to be honest I’m not even sure why I’m here.
• Now, I’m very sceptical about herbal medicine but my friend said you might be able to help so I’m willing to see what you have to offer.
• Well, I’m seeing a homoeopath who is clearing things at a very deep level but in the meantime I’m getting all these symptoms that I’d like you to sort out.
• So, what, if possible, would you like the herbal medicine to do for you?
• How would you like the herbs to change your health?
• What one thing, particularly, would you like the herbs to do for you?
• So can I check in and see where we are at now? What are you thinking?
• Having got to this point, is it worth us pausing a moment to consider what you would like to do next?
• So tell me more about what you’d like to come out of what we’re doing here.
• So before we move towards finishing for today – is there anything you wanted to talk about or know more about that we haven’t covered?
From Barry et al. (2000) above, we have some hints as to how we might adapt the consultation structure, techniques and style to enable the patient to be more fully present in the consultation. Elements include:
• Ask patients to present their full selves
• Move the structure closer to the lifeworld and away from biomedical abstraction
• Aim for a fuller, more complex, situated view of the patient and her agenda.
• Be open to questioning your own expectations and agenda as a practitioner
• Focus on working on the patient but do not neglect work on the self
• See the consultation as an opportunity for mutual self-discovery and learning
• Be open to having your beliefs and behaviours challenged
• Relish the opportunity for self-development that each consultation offers.
There is not only room for, but also a clear and urgent need for, innovation in consultation methodology and patient profiling in order to greater appreciate patient expectations and total agendas. Middleton et al. (2006) has demonstrated two methods that have yielded encouraging results: practitioner education and the use of agenda forms for patients to complete themselves. Their study found that:
As previously observed, the issue of time is not currently problematic for most phytotherapists in the UK. The phytotherapist is ideally placed to engage profoundly with the patient’s expectations and agenda, yet it is unclear (since there are few studies) whether this potential is being realized (though see Little for an interesting introduction to this area). Individual practitioners can raise their own awareness of this issue through directed reading and critical reflection and herbal medicine students should be trained to elicit patient expectations/agendas as a core element of practice.
Katz (1986) underlines the centrality of reflection in enabling patient autonomy:
He goes on to put this principle into perspective, touching on the issues discussed in this section:
Weighing the Three Classic Strategies
Tensions arise in the relationship between history, examination and investigation as an effect of the types of knowledge they are considered to represent. The history and most examinations are considered to provide subjective findings, whereas investigations are designated objective. Objectivity is associated with ‘real’, whereas the subjective is considered suspect, debatable, open to question. Since medical science prioritizes objective information, the status of investigation as prime arbiter of diagnostic veracity has now been assumed. Although investigations do, of course, contribute to the understanding of patient’s situations (significantly and crucially in some cases), they remain an extremely limited means of knowing the patient. Despite this, such value has been placed on investigations that the phrase ‘treating the test results not the patient’ as an attack on over-reliance on tests is now in popular use. Numerous factors (individual, procedural, environmental) can lead to erroneous or misleading test results being given – investigations are not fault-free, nor are they all-encompassing. Investigations are rarely pathognomonic – they require interpretation and/or hypothesis-testing in practice. Concern has been expressed that the move to conduct routine screening investigations to test for the presence of pathologies in apparently healthy people may often be useless at best and sometimes harmful (Hadler 2004). It also remains the case that the vast majority of conditions presenting in general practice, as in phytotherapy, are diagnosed (or remain un-diagnosed) on the case history alone. Excessive, non-contextualized or unquestioning reliance on data derived from investigations can critically undermine the purposes of the consultation.
The consultation also tends to be taught as if the only encounter that practitioner and patient ever have is that of a first visit. In chronic conditions, where the patient sees the same practitioner over a long period of time (this is the norm in phytotherapy but has become less common for doctors), the greater challenge and skill lies in successfully using the potential of the follow-up visit to provide support and further advance healing. (We will explore this idea further in Chapter 5.)
On Convergence and Divergence
Since the mid-1990s, in the UK, herbal medicine practitioner education has moved out of the independent sector and into academic institutions of the state, i.e. universities. Many herbal practitioners have seen this as a sign of the success of the discipline and as a marker of its legitimization. Some other CAM disciplines have also made this transition. Opponents of CAM have railed against this development precisely because they too consider that incorporation of CAM courses into state institutions provides tacit legitimatization – a step that they consider unwarranted and which they invariably criticize vehemently. An editorial in Times Higher Education (2008) presented the usual litany pertaining to this issue – and a case study: ‘Opponents have derided CAM as ‘mumbo-jumbo’ that ‘no respectable university should provide’, ‘bogus’ and ‘the denial of rationality’ – and these are all criticisms that must be taken seriously … the University of Central Lancashire faced a revolt from its own staff, who claimed it was promoting ‘quackery’ by offering courses in homeopathy, acupuncture and herbal medicine’.
There is a danger that herbal practice could now develop as a quasi-biomedical discipline where its practitioners ape general practitioners except providing a vegetable remedy in place of a synthetic chemical one. Many herbalists would accuse that this is actually a pretty accurate description of phytotherapy in its current state already. I continue to argue the case for a different perspective on phytotherapy, however as one which denotes (as discussed in Ch. 2) an approach to herbal medicine that engages with science and biomedicine while continuing the herbal tradition – but which is able to deal with all of these strands critically. Traditions of medicine should not be fixed – they must adapt and evolve or be consigned to the history books. Certainly there are perennial values and perspectives, which will remain as touchstones that define the herbal profession – these are the very aspects that should be defended and promoted – but much of value will be gained by keeping the doors of innovation and creativity open. The challenge for herbal medicine, in education, research, promotion and practice, is to make the case for, and to proselytize, its core principles and tenets while embracing and applying new information and techniques that increase its ability to benefit patients.
Distinctive Features of the Phytotherapy Approach
• Aim to take a very broad view of the patient
• Pay attention to subtle detail that might be interpreted as bodily messages that the patient needs to hear but which would conventionally be considered of little or no significance
• Be concerned with the milieu intérieur, or terrain, of the patient
• Seek opportunities to enable the patients’ self-healing
• Identify factors that are disruptive or unsustainable in terms of the body when viewed as a balanced ecosystem
• Be more concerned with assessing general systems performance than seeking specific sites of lesions
• View the appreciation of the patients’ nature and personality as pivotal in determining the course of treatment
• Be generally more fixated on the macroscopic as opposed to the microscopic features of health and illness
• Seek to integrate features into distinctive but diffuse general patterns rather than separate them into precise and separate phenomena
• Be concerned with such features as the thermal and hydration features of the patients’ condition – the combination of factors such as heat, cold, moisture and dryness
• Be concerned with the extent to which a particular aspect or pattern is a sign of an excess or deficiency picture
• Consider the degree to which the patients’ picture can be said to represent an imbalance in pairings such as stimulation-depression and contraction-relaxation
• Pay particular attention to bodily systems and functions that are considered to be of fundamental importance in maintaining the integrity of the body, such as: digestion, elimination, immunity, nervous function, hormonal function
• Seek to determine which organs, systems or functions need to be modulated using such terms as: support, strengthen, tonify, nurture, calm, drain, cool, warm, moisten, etc.
• Place high priority on psychoemotional influences
• Be concerned to determine the patients’ attitudes and beliefs about their own condition and to life issues in general
• Place high value on the patients’ own evaluation of their condition and its causative influences
• Have confidence in her ability to address a wide range of conditions and features due to the huge scope of herbal medicines and their flexibility in being applied in numerous types of preparations to suit almost any eventuality
• Be alert to subtle changes in treating chronic conditions in the awareness that herbal medicine tends to gradually accrete changes.
• Phytotherapists may place emphasis on some concepts and practices that are now considered outmoded, or which have been neglected by conventional medicine, such as convalescence.
• The majority of herbal medicines possess a wide therapeutic window – meaning that any toxic dose is distant from the therapeutic amount and consequently a broad range of dosages are recommended by various herbal authorities. Pharmaceutical drugs have a narrower window – meaning that the toxic dose is relatively close to the therapeutic dose and therefore great precision is required in prescribing. The size of the safety zone for most herbal medicines means that the phytotherapist may take a more relaxed, looser, attitude to prescribing and be more willing to consider a degree of experimentation or trial in formulating and applying prescriptions to be not only ethical but essential to remedial success. This capacity, afforded by the plants themselves, may be reflected in a looser, more experimental approach to the consultation in general.
• Due to the close proximity of the therapeutic and the toxic dose the application of conventional drugs is closely associated with notions of risk and danger and their accompanying emotions – anxiety and fear. Since the greater percentage of herbal medicines are relatively benign the phytotherapist will tend to view her materia medica as a collection of subtle, safe and trustworthy entities that the patient should be able to entertain with confidence. While conventional medicines tend to be viewed by doctors as precision tools working on specific receptors, phytotherapists look upon their herbs as general systems adaptors. (This notwithstanding the fact that drugs can exert general effects and herbal constituents do bind to specific cell receptors.) If the classical concept of efficacious drug treatment in biomedicine can be illustrated as a magic bullet hitting the centre of a target within a terrified body then the herbal counterpart image is that of laying a healing blanket over a relaxed and resting body. The cartoon conventional drug is an incendiary device strategically deployed as part of the war being waged in the body during disease versus the equivalent herbal caricature of the mother embracing us and kissing away the hurt.
• Since herbs can do things that conventional drugs cannot, phytotherapists will look for things in the consultation that doctors do not. The propensities (seen in terms of actions here) of herbs which give rise to different ways of looking and acting include: the trophorestoratives, the adaptogens, the immunostimulants and modulators, the antioxidants, the nourishing nervines, the bitters, the circulatory stimulants, the aromatic digestives, etc.
We might formulate a list of words (Table 4.1) and their pairings that roughly distinguish the differences between conventional and herbal medicines with regard to their relative qualities and behaviours.
Herbal medicine | Pharmaceutical drug |
---|---|
Slow | Rapid |
Subtle | Crude |
Gentle | Aggressive |
Familiar | Alien |
Complex | Simple |
Food-like | ‘Un-like’ |
General | Precise |
Total | Partial |
Diffuse | Targeted |
Natural | Synthetic |
Messy | Tidy |
Dirty | Sterile |
Chaotic | Ordered |
Attractive | Repulsive |
From-life | Non-life |
Feminine | Masculine |
While the list of words in Table 4.1 is indicative of the nature of the two types of remedies they are also suggestive of the manner in which the consultation is constructed and conducted.
On Diagnosis and Assessment
• Its primary goal is reaching a diagnosis
• Its secondary goals are unclear, but in any case are of little importance
• Although the interview is said to be extremely important nobody seems to know much about how it works
• But an awful lot is known about physical examination
• A typical consultation would consist of about 10% case-taking and 90% physical examination
• Attainment of a definitive diagnosis is possible in most cases
• Patients normally fit general diagnostic pictures
• Conditions are generally acute
• Providing a space for reflection, review and re-orientation
• Assessment of change and degree of progression or regression towards or away from therapeutic goals and the patients’ own targets
• Work on understanding and making sense of the patients’ predicament; and on finding meaning
Greaves (1996) locates the emphasis on diagnosis in the consultation with the primacy accorded to the treatment of acute cases and to hospital medicine:
Summerton (2004) has underlined the elusive nature of classical organic diagnoses in general practice:
The provision of a credible medical diagnosis validates the patient’s predicament as a sick-person and legitimizes their entitlement not only to statutory care and the consumption of related resources, and to exemption from work and family duties and other commitments but also to the sympathy and support of family, friends and the wider society. Conversely, the un-labelled (or unconvincingly labelled) patient is either barred from these privileges or granted only limited, and in which case probably grudging, access to them. Parsons (1951) described the valid patient as one who fits the socially defined ‘sick-role’ – the ultimate arbiter of this is the doctor and his primal act of power in conferring this role lies in the making of the diagnosis. A patient in possession of a credible diagnosis is said by Parsons to have both rights and obligations:
• The right to exemption from normal social roles and the right to be considered innocent in generating his condition (i.e. the patient is not personally responsible for his predicament and therefore should not be held liable for it)
• The obligation to do all he can to get well, including following the advice and taking the treatment provided by the doctor.
Diagnosis may be misused by practitioners (usually unawares) as a tool of political control, facilitation or expiation. Illich (1976) alerts us to this:
• The decline in ‘heavy industry’ in developed-world countries in favour of the rise of the ‘service economy’ (notwithstanding the fact that the term ‘service-industry’ is in use)
• The intentional identification, and disguising, of ‘the industrial system’ as belonging to a historical era that has now passed to admit a more benign age (when in reality the physical labour demands of the past have merely been replaced by an equivalent set of excessively depleting integrated physical-emotional-mental work demands: the call centre overtaking the factory).
One stunning example of how diagnosis can be formulated to accurately reflect the sociopolitical aetiology of a condition and to point up rather than mask the political nature and challenge of the phenomena is provided by the concept of karoshi used in Japan. Karoshi may be translated as ‘death from overwork’ and has been applied as a ‘socio-medical term in relation to workers’ compensation’ (Iwasaki et al. 2006) when it may also be taken to refer to disability arising from overwork. In the first few years of the twenty-first century, the Japanese Ministry of Health, Labour and Welfare, reinterpreted hundreds of cases of cerebrovascular and ischaemic heart disease as ‘labour accidents resulting from overwork (karoshi) …’ (Iwasaki et al. 2006). However, this was a development with a long history, since the relationship between sudden death and the Japanese production management (JPM) model had been noted and discussed since the 1970s (Nishiyama & Johnson 1997).
The designation of karoshi enables the causative factors that are absent in diagnoses such as ‘cerebrovascular accident’ and ‘myocardial infarction’ to be clearly stated. The genesis of the concept of karoshi lies in the extraordinary degree to which Japanese workers have been pushed to enable economic development. Iwasaki (2006) reports that: ‘in 2001, 28.1% of Japanese employees were working for 50 hours or more per week … much higher than those in European countries such as Netherlands (1.4%), Sweden (1.9%), Finland (4.5%), and Germany (5.3%)’. The eventual Japanese government recognition of overwork as the key aetiological factor in specific cases of cardiovascular disease was not a move of enlightened benevolence to the populace but rather one of economic pragmatism. The limit of overwork had been pushed so far that it was threatening to fundamentally destabilize the economy – a programme of compensation matched with measures to limit overwork was a necessary means of maintaining the economy. This case study illustrates how far a malign economic practice has to go before it is acknowledged by the state (it has, in fact, to become a threat to the maintenance of the state) and some degree of remedial political action is taken.
• Every relevant asthma diagnosis that is not accompanied by a word denoting ‘exposure to pollution and lack of safe town planning’
• Every relevant depression diagnosis that is not accompanied by a word denoting ‘absence of a satisfactory sense of personal meaning due to alienating factors in society’
• Every relevant attention-deficit hyperactivity disorder diagnosis that is not accompanied by a word denoting ‘poor diet and parental absence due to lack of time deriving from economic pressures’.
• Seek the patients’ views and perspective on the diagnosis
• Question the conventional diagnosis – does it appear to be accurate?
• Provide supplemental information and interpretation of the diagnosis
In routinely questioning the conventional diagnosis it is not suggested that biomedical diagnoses are routinely wrong in terms of their own frame of reference, rather that they may occasionally be inaccurate or incomplete. The views of any fellow clinician should be respected but never uncritically accepted. Should the reliability of a conventional diagnosis be substantially challenged, it may be desirable for the phytotherapist to communicate with the physician concerned – such a situation is discussed in Appendix 3.
• The meaning of the diagnosis and details such as the significance of test findings
• Complicating and confounding factors
• Implications for treatment – conventional, phytotherapeutic and otherwise.
• The patient has self-diagnosed
• The patient has no prior diagnosis
• A conventional diagnosis has been given by a doctor
• A conventional diagnosis is currently being sought (e.g. the patient is awaiting investigation or the arrival of test results)
• A diagnosis has been given by a non-conventional practitioner (e.g. an acupuncturist or osteopath)
• A non-conventional diagnostic technique has been used (e.g. iridology, vega, reflexology, hair mineral analysis)
• A diagnosis has been provided by a health-screening service.
Diagnosis: an attempt to define, as precisely and definitively as possible, the patient’s medical condition.
Assessment: a broad survey and gathering together of factors initiating, modulating and sustaining the patients’ predicament that is as full as possible.
A holistic and integrated approach must be able to accommodate and interpret a wide range of patient experiences, including those facets that do not fit classical diagnostic pictures. Such facets are sometimes referred to as ‘medically unexplained symptoms’ (MUS). Epstein et al. (2006) have researched and discussed the ways in which ambiguity generated by MUS impacts the consultation. They state that: ‘Dealing with ambiguity … increases the cognitive complexity of the encounter and physician anxiety …’ and suggest that: ‘In an effort to manage their own anxiety, physicians … either reject the patient’s symptoms (or ideas about causation) as not legitimate or collude with the patient’s proposed explanations and requests in an attempt to please the patient’. Each of these coping methods is problematic, with collusion proving little better than rejection, since it: ‘… may limit consideration of a wider range of diagnostic alternatives, whereas premature reassurance may paradoxically raise patients’ anxieties’. The authors further describe two varieties of communication style that are commonly employed in response to ambiguity in the patients’ case, these are: ‘usual care, in which ambiguity is denied and closure sought’ and: ‘a “partnering” approach in which the patient’s experience is understood, ambiguity is acknowledged, and patient input is sought’. This latter style is referred to as an example of patient-centred communication and it is suggested that additional patient-centred strategies will complement this manner of response, such as: ‘… coming to agreement on a name for the illness and a plan for follow-up visits, diagnostic testing, and treatment, recognizing that ambiguity about the nature of some symptoms may persist for months or years’. These various strategies are worth summarizing and elaborating as guidelines in dealing with situations wherein a concrete diagnosis cannot be given:
• Acknowledge that there is uncertainty regarding the diagnosis
• Seek, nonetheless, to appreciate and understand the patient’s predicament as fully as possible in the absence of a diagnosis
• Reflect on the patient’s interpretation and explanations
• Negotiate a working description (or ‘name’) for the predicament in lieu of a diagnosis
• Develop a plan to address the situation over subsequent visits
• Consider whether further investigation may be helpful
• Construct a treatment plan to address the working hypothesis regarding the patient’s condition
• Be able to continue caring in this way should a more concrete diagnosis fail to be arrived at over time.