Fig. 2.1
New presentation of locomotion (© Largo 2007, p. 130)
2.1.1.4 24–36 Months (Third Year)
At the start of the third year the motor skills are being tried out and improved or refined; this may result in many falls at the beginning. By the end of the third year the movements are more fluid and controlled. The toddler walks safely and independently, carries things around and climbs on chairs and other objects, seeking a challenge. Going down stairs is achieved step by step initially but, by the end of the third year, can be done by alternating the feet. The child enjoys balancing on things; doing so on a beam as narrow as 20 cm is possible. He/she enjoys swinging and throws large balls with both hands. Catching is usually more coincidental. By the end of the third year a child learns to ride a tricycle (Becker, Steding-Albrecht 2006).
2.1.1.5 36–48 Months (Fourth Year)
The child plays on simple apparatus in the playground without help. He/she can aim a distance of 1–2 m successfully when throwing and a ball can be caught at chest height with the arms. The child can stand on one leg for about 2 s and can crawl under a gymnastic bench and do a summersault. Jumping over a rope is only possible with both legs together at first. Overall, the quality of movement improves and the muscle tone matches the task better.
2.1.1.6 48–60 Months (Fifth Year)
A scooter, tricycle or other pedal toy can be steered safely; the child is able to pedal and steer at the same time. A hindrance can be avoided. The child can jump 30–50 cm forwards from standing and can jump over a rope with the feet singly. In the playground he/she climbs and plays on a gym apparatus a great deal. He/she can stand on one leg for 3–4 s (Becker, Steding-Albrecht 2006).
2.1.2 Assessment of Children with EB
It is best to provide an opportunity with suitable play equipment where the child can play and exercise according to his/her age, in as normal a manner as possible so that he/she can be observed and analysed. A room with space for freedom of movement is best. To minimise the risk of falling or bumping there should be little furniture, and what there is should not have sharp corners. Gymnastic mats, for example from Airex®, provide a good surface for simple balancing or ball games, etc. because they reduce pressure on painful blisters. For crawling or other movements on the floor, such mats are unsuitable because there is too much friction, which causes the development of blisters. Smooth parquet flooring or firm mats with a smooth covering are more suitable.
Before starting the child should be inspected for blisters and open wounds. If removal of bandaging is painful and complicated, then the parents should be consulted. It must be taken into consideration that pain on particularly prominent places such as knees, elbows, abdomen, instep and soles of the feet can lead to avoidance tactics in certain movements or tasks.
2.1.2.1 What to Observe
Sitting
How does the child get into the sitting position?
How does the child sit (straighten up from the hips, trunk, head) | stability in sitting | can the child vary the sitting positions | use of arms while sitting | hand–hand coordination | eye–hand coordination?
Locomotion on the floor (e. g. crawling after a ball)
How does the child move (creep, slide on the bottom, crawl | alternating | does the child show signs of relieving postures or one-sided weight bearing)?
How does he/she change position? (transfer from sitting to locomotion)
How does he/she cope with obstacles? (motor planning | position of the head and extremities while crawling under obstacles – proprioception)
Transfer from floor to upright
Does the child change to kneeling to pull him-/herself up on furniture?
Or, has the child developed an alternative method to get into an upright position (e. g.: from quadruped position | pushing up with his/her bottom against a wall)?
Walking
Gait (weight bearing on the feet | relieving postures | positioning of the feet, the hips, the head | width of gait | stability | postural security | arm swinging | transfer of weight from heel to forefoot | overcoming obstacles | stopping intentionally | change of direction | picking up objects from the floor)
Going up and down stairs
Step by step or alternating?
Holding on or not?
Jump off the ground with both feet
Is jumping off with both feet possible (from the floor | from a mat or trampoline)?
Timing, coordination of the legs and arms when jumping
Stability on landing
Balancing course
Walking on a soft mat, on a balance board or on soft cushions or sandbags
Balance, stability, compensatory movement
Standing upright against the pull of gravity with increasing need to keep balance when, for example, on an unstable surface such as a foam mat. Does the child show excessive compensatory movement?
Speed of locomotion
Quality of locomotion
Climbing on wallbars or a ladder
Position of hips, trunk and head while climbing
Climbing step by step or alternating
Proprioception (conscious positioning of extremities without visual control)
Coordination of the upper and lower extremities
Opposition of the thumb (so long as there is no hand deformity) when holding the bars
Achieving height (careful | frightened | confident)
Judging own abilities
Judging danger
Throwing and catching a ball
Stability when catching and throwing
Timing and hand–hand coordination when catching
Ability to aim and adjust force when throwing
Riding a Bobbycar (car to sit on and propel with feet on the ground)/tricycle
Can the child hold and use the steering wheel or steering stick in spite of possible limitations of the hands (mutilations and pseudosyndactyly caused by DEB may make it difficult or impossible)?
Is steering done by lifting and turning the vehicle or by conscious use of the steering mechanism?
How does the child cope with obstacles?
Can the child pedal and steer a tricycle simultaneously (from the age of 5 years)?
2.1.3 Parental Questionnaire Focusing on the Early Motor Development
Parental questionnaire focusing on the early motor development
For children with epidermolysis bullosa (EB)
Motor development
Motor ability | Age in months | Were (are) there any EB-specific problems or difficulties? |
---|---|---|
Raise head and upper trunk while prone | ||
Roll from tummy to back | ||
Roll from back to tummy | ||
Creep | ||
Crawl | ||
Sit | ||
Pull up to standing on furniture
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